Distance education methods are useful for delivering education to palliative caregivers: A single-arm trial of an education package (PalliativE Caregivers Education Package)

Forbat, Liz and Robinson, Rowena and Bilton-Simek, Rachel and Francois, Karemah and Lewis, Marsha and Haraldsdottir, Erna (2017) Distance education methods are useful for delivering education to palliative caregivers: A single-arm trial of an education package (PalliativE Caregivers Education Package). Palliative Medicine, 32 (2). pp. 581-588. ISSN 0269-2163

[img] PDF
4880.pdf - Published Version
Restricted to Repository staff only

Download (683kB)
[img]
Preview
PDF
4880aac.pdf - Accepted Version

Download (425kB) | Preview
Official URL: https://doi.org/10.1177/0269216317712849

Abstract

Background: Face-to-face/group education for palliative caregivers is successful, but relies on caregivers travelling, being absent from the patient, and rigid timings. This presents inequities for those in rural locations. Aim: To design and test an innovative distance-learning educational package (PrECEPt: PalliativE Caregivers Education Package). Design: Single-arm mixed-method feasibility proof-of-concept trial (ACTRN12616000601437). The primary outcome was carer self-efficacy, with secondary outcomes focused on caregiver preparedness and carer tasks/needs. Analysis focused on three outcome measures (taken at baseline and 6 weeks) and feasibility/acceptability qualitative data. Setting and participants: A single specialist palliative care service. Eligible informal caregivers were those of patients registered with the outpatient or community service, where the patient had a prognosis of ⩾12 weeks, supporting someone with nutrition/ hydration and/or pain management needs, proficient in English and no major mental health diagnosis. Results: Two modules were developed and tested (nutrition/hydration and pain management) with 18 caregivers. The materials did not have a statistically significant impact on carer self-efficacy. However, statistically significant improvements were observed on the two subsidiary measures of (1) caregiving tasks, consequences and needs (p = 0.03, confidence interval: 0.72, 9.4) and (2) caregiver preparedness (p = 0.001, confidence interval: −1.22, −0.46). The study determined that distance learning is acceptable and feasible for both caregivers and healthcare professionals. Conclusion: Distance education improves caregiver preparedness and is a feasible and acceptable approach. A two-arm trial would determine whether the materials benefitted caregivers and patients compared to a control group not receiving the materials. Additional modules could be fruitfully developed and offered.

Item Type: Article
Uncontrolled Keywords: Palliative care, caregivers, distance education, pain management, nutritional sciences
Divisions: School of Health Sciences > Nursing
Date Deposited: 19 Sep 2017 14:12
Last Modified: 31 Jan 2018 10:43
URI: http://eresearch.qmu.ac.uk/id/eprint/4880

Statistics

Downloads
Activity Overview
0Downloads
11Hits

Altmetric

Actions (login required)

Edit Item Edit Item