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dc.rights.licenseThis is an Open Access article distributed under the terms of the Creative Commons Attribution-NonCommercial-NoDerivatives License (http://creativecommons.org/licenses/by-nc-nd/4.0/), which permits non-commercial re-use, distribution, and reproduction in any medium, provided the original work is properly cited, and is not altered, transformed, or built upon in any way.
dc.contributor.authorGórska, Sylwiaen
dc.contributor.authorMaciver, Donalden
dc.contributor.authorForsyth, Kirstyen
dc.date.accessioned2019-11-22T13:18:49Z
dc.date.available2019-11-22T13:18:49Z
dc.date.issued2019-12-02
dc.identifier.citationGórska, S., Maciver, D. & Forsyth, K. (2019) Participation as means for adaptation in dementia: A conceptual model. Aging & Mental Health (In Press).en
dc.identifier.issn1360-7863en
dc.identifier.issn1364-6915
dc.identifier.urihttps://eresearch.qmu.ac.uk/handle/20.500.12289/10213
dc.identifier.urihttps://doi.org/10.1080/13607863.2019.1695740
dc.descriptionMaciver, Donald - ORCID 0000-0002-6173-429X https://orcid.org/0000-0002-6173-429X
dc.descriptionReplaced AM with VoR 13 Jan 2020.
dc.description.abstractObjectives: There are a number of conceptual models of dementia, capturing a range of biopsychosocial factors. Few integrate the lived experience of dementia. The aim of this study was to develop a conceptualisation grounded in the first-hand accounts of living with the condition and reflecting its complexity.
dc.description.abstractMethod: The study was conducted within an explanatory, critical realist paradigm. An overarching narrative approach, informed by a previously completed systematic review and metasynthesis of research on the lived experience of dementia and the assumptions of complexity theory, was used to guide data collection and analysis. Data were contributed by 31 adults, including 12 people living with dementia and 19 family caregivers.
dc.description.abstractResults: The experience of living with dementia was conceptualised as a process of adaptation through participation, emerging from ongoing, dynamic and nonlinear interactions between the adaptive capacity of a person with dementia and the adaptive capacity within the environment. The proposed conceptual model describes contexts and mechanisms which shape this capacity. It identifies a range of potential outcomes in dementia. These outcomes reflect interactions and the degree of match between the adaptive capacity of a person and the adaptive capacity within the environment.
dc.description.abstractConclusion: By recognising and exploring the potential for adaptation and enduring participation in dementia, findings of this research can support practitioners in facilitating positive outcomes for people affected by the condition.
dc.description.sponsorshipwork completed as part of PhD process supported by Queen Margaret University Edinburgh.en
dc.description.urihttps://doi.org/10.1080/13607863.2019.1695740en
dc.language.isoenen
dc.publisherTaylor & Francisen
dc.relation.ispartofAging & Mental Healthen
dc.rightsThis is an Accepted Manuscript of an article published by Taylor & Francis in Aging & Mental Health on [date of publication], available online: http://www.tandfonline.com/[Article DOI].
dc.rights© 2019 Queen Margaret University, Edinburgh. Published by Informa UK Limited, trading as Taylor & Francis Group
dc.subjectDementiaen
dc.subjectPersonal Experienceen
dc.subjectCritical Realismen
dc.subjectComplexity Theoryen
dc.subjectNarrative Methodologyen
dc.titleParticipation as means for adaptation in dementia: A conceptual modelen
dc.typeArticleen
dcterms.accessRightspublic
dcterms.dateAccepted2019-11-15
dc.date.updated2020-01-13
dc.description.ispublishedinpress
rioxxterms.typeJournal Article/Reviewen
rioxxterms.publicationdate2019-12-02
refterms.dateFCD2019-11-22
refterms.depositExceptionpublishedGoldOAen
refterms.accessExceptionNAen
refterms.technicalExceptionNAen
refterms.panelUnspecifieden
qmu.authorGórska, Sylwiaen
qmu.authorMaciver, Donalden
qmu.authorForsyth, Kirstyen
qmu.centreCentre for Applied Social Sciencesen
dc.description.statusinpress
refterms.versionVoRen
refterms.dateDeposit2019-11-22


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