Epilepsy, Culture, Identity and Well-being: A Study of the Social, Cultural and Environmental Context of Epilepsy in Cameroon

Abstract

Epilepsy presents an identity of exclusion, which at multiple levels hinders the ability to engage with one's community. This article describes an exploratory, mixed methods study (N = 42) of the relationship between the social, cultural and environmental context and the experience of living with epilepsy in Cameroon. Participants were identified as `epileptics', consequently restrictions placed on them reduced their ability to perform traditional roles, affected their social value and excluded them from their communities. Participants detail the effects of their reduced `social value' and the challenges they face in attempts to be reintegrated as productive and functioning members of society.