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dc.contributor.authorKielmann, Karina
dc.contributor.authorCataldo, Fabian
dc.date.accessioned2018-06-29T22:03:55Z
dc.date.available2018-06-29T22:03:55Z
dc.date.issued2010-08
dc.identifierER2527
dc.identifier.citationKielmann, K. & Cataldo, F. (2010-08) Tracking the rise of the expert patient- in evolving paradigms of HIV care, AIDS Care, vol. 22, pp. 21-28.
dc.identifier.issn0954-0121
dc.identifier.urihttp://www.tandfonline.com/doi/abs/10.1080/09540121003721000
dc.identifier.urihttps://eresearch.qmu.ac.uk/handle/20.500.12289/2527
dc.description.abstractIn the context of rolling out antiretroviral treatment programmes in resource-constrained settings, expert patients- are hailed as an important step towards greater involvement of people living with HIV (PLHIV) in HIV care, and in addressing the human resources crisis. The rise of the expert patient- in HIV care partly echoes the move towards greater patient agency and self-management that informs health services delivery in industrialised countries. However, the expert patient- also represents a particular moment in the trajectory of PLHIVs' quest for greater access to treatment and health care. In this paper, we examine the unique evolution and 'instrumentalisation' of PLHIV in public health in relation to shifts in the epidemiology, interventions and socio-political response related to HIV since the 1980s. Synthesised broadly as risk-based-, empowerment-, structural- and activist- approaches, four key paradigms are identified that attribute different levels of citizenship for PLHIV, that is the motivation, agency and responsibility to act not only on their own interests, but also on behalf of collective interests in HIV prevention and care. We problematise the concept of the patient-citizen by drawing attention to the context-specificity of such notions as patient identity, capacity and rights as well as the structural realities of access to treatment, and broader engagement with the health system. We conclude by offering some thoughts on the applicability of 'expert patient' approaches across a broad range of settings.
dc.format.extent21-28
dc.publisherTaylor & Francis
dc.relation.ispartofAIDS Care
dc.subjectHiv/Aids
dc.subjectAntiretroviral Therapy
dc.subjectTherapeutic Citizenship
dc.subjectHealth Activism
dc.subjectExpert Patient
dc.titleTracking the rise of the expert patient- in evolving paradigms of HIV care
dc.typearticle
dcterms.accessRightsrestricted
dc.description.facultysch_iih
dc.description.volume22
dc.identifier.doihttp://10.1080/09540121003721000
dc.description.ispublishedpub
dc.description.eprintid2527
rioxxterms.typearticle
qmu.authorKielmann, Karina
dc.description.statuspub
dc.description.numberSupple


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