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dc.contributor.authorCunniff, A. L.
dc.contributor.authorChisholm, Vivienne
dc.contributor.authorChouliara, Zo
dc.date.accessioned2018-06-29T21:30:13Z
dc.date.available2018-06-29T21:30:13Z
dc.date.issued2015
dc.identifierER3912
dc.identifier.citationCunniff, A., Chisholm, V. & Chouliara, Z. (2015) Listening to Fathers of Sons with Duchenne Muscular Dystrophy. New Male Studies: An International Journal, 4 (2), pp. 5-23.
dc.identifier.issn1839-7816
dc.identifier.urihttp://www.newmalestudies.com/OJS/index.php/nms/article/view/184
dc.identifier.urihttps://eresearch.qmu.ac.uk/handle/20.500.12289/3912
dc.description.abstractDuchenne Muscular Dystrophy (DMD) affects the entire family, however, most studies concern maternal adjustment with fathers' adjustment largely overlooked. To investigate experiences of fathers of sons with Duchenne Muscular Dystrophy (DMD) interviews were held with 15 fathers of a son with DMD, from across the UK. 55 fathers from an associated study also provided written accounts. Grounded theory methodology was used to evaluate the data. Four key themes emerged: 1) loss and acceptance; 2) support versus isolation; 3) fight for resources and 4) race against time. Fathers described the impact of emotional/behavioural factors, which were not routinely addressed by professionals. Findings emphasise importance of person-centred care, indicating how needs could be met, from fathers' perspectives.
dc.format.extent5-23
dc.publisherAustralian Institute of Male Health and Studies.
dc.relation.ispartofNew Male Studies: An International Journal
dc.subjectDuchenne Muscular Dystrophy
dc.subjectexperiences of fathers
dc.subjectqualitative research
dc.titleListening to Fathers of Sons with Duchenne Muscular Dystrophy
dc.typearticle
dcterms.accessRightspublic
dc.description.facultydiv_PaS
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dc.description.volume4
dc.description.ispublishedpub
dc.description.eprintid3912
rioxxterms.typearticle
qmu.authorChouliara, Zo
qmu.authorChisholm, Vivienne
qmu.centreCentre for Applied Social Sciences
dc.description.statuspub
dc.description.number2


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