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dc.contributor.authorBrown, Michael
dc.contributor.authorChouliara, Zo
dc.contributor.authorMacArthur, Juliet
dc.contributor.authorMcKechanie, Andrew
dc.contributor.authorMack, Siobhan
dc.contributor.authorHayes, Matt
dc.contributor.authorFletcher, Joan
dc.date.accessioned2018-06-29T15:53:22Z
dc.date.available2018-06-29T15:53:22Z
dc.date.issued2016-02-11
dc.identifierER4289
dc.identifier.citationBrown, M., Chouliara, Z., MacArthur, J., McKechanie, A., Mack, S., Hayes, M. & Fletcher, J. (2016) The perspectives of stakeholders of intellectual disability liaison nurses: a model of compassionate, person-centred care, Journal of Clinical Nursing, vol. 25, , pp. 972-982,
dc.identifier.issn9621067
dc.identifier.urihttp://dx.doi.org/10.1111/jocn.13142
dc.identifier.urihttps://eresearch.qmu.ac.uk/handle/20.500.12289/4289
dc.description.abstractAims and objectives To investigate the experiences of patients with intellectual disabilities, family and paid carers regarding the role of liaison nurses and the delivery of compassionate, person-centred care. From this to propose a model of person-centred care embedded in these experiences. Background People with intellectual disabilities have a high number of comorbidities, requiring multidisciplinary care, and are at high risk of morbidity and preventable mortality. Provision of compassionate, person-centred care is essential to prevent complications and avoid death. Design A qualitative design was adopted with Interpretative Phenomenological Analysis for data analysis. Methods Semistructured interviews and focus groups were conducted. Data were analysed with a focus on compassionate, person-centred care elements and components. Themes were modelled to develop a clinically meaningful model for practice. Results Themes identified vulnerability, presence and the human interface; information balance; critical points and broken trust; roles and responsibilities; managing multiple transitions; 'flagging up' and communication. Conclusions The findings provide the first 'anatomy' of compassionate, person-centred care and provide a model for operationalising this approach in practice. The applicability of the model will have to be evaluated further with this and other vulnerable groups. Relevance to clinical practice This is the first study to provide a definition of compassionate, person-centred care and proposes a model to support its application into clinical practice for this and other vulnerable groups.
dc.format.extent972-982
dc.publisherWiley
dc.relation.ispartofJournal of Clinical Nursing
dc.titleThe perspectives of stakeholders of intellectual disability liaison nurses: a model of compassionate, person-centred care
dc.typearticle
dcterms.accessRightsrestricted
dc.description.facultycasl
dc.description.volume25
dc.identifier.doihttp://doi:10.1111/jocn.13142
dc.description.ispublishedpub
dc.description.eprintid4289
rioxxterms.typearticle
qmu.authorMack, Siobhan
qmu.centreCASL
dc.description.statuspub
dc.description.number07-Aug


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