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dc.contributor.authorForbat, Liz
dc.contributor.authorRobinson, Rowena
dc.contributor.authorBilton-Simek, Rachel
dc.contributor.authorFrancois, Karemah
dc.contributor.authorLewis, Marsha
dc.contributor.authorHaraldsdottir, Erna
dc.date.accessioned2018-06-29T21:37:20Z
dc.date.available2018-06-29T21:37:20Z
dc.date.issued2017-06-12
dc.identifierER4880
dc.identifier.citationForbat, L., Robinson, R., Bilton-Simek, R., Francois, K., Lewis, M. & Haraldsdottir, E. (2017) Distance education methods are useful for delivering education to palliative caregivers: A single-arm trial of an education package (PalliativE Caregivers Education Package). Palliative Medicine, 32(2), pp. 581-588.
dc.identifier.issn0269-2163
dc.identifier.urihttps://doi.org/10.1177/0269216317712849
dc.identifier.urihttps://eresearch.qmu.ac.uk/handle/20.500.12289/4880
dc.description.abstractBackground: Face-to-face/group education for palliative caregivers is successful, but relies on caregivers travelling, being absent from the patient, and rigid timings. This presents inequities for those in rural locations. Aim: To design and test an innovative distance-learning educational package (PrECEPt: PalliativE Caregivers Education Package). Design: Single-arm mixed-method feasibility proof-of-concept trial (ACTRN12616000601437). The primary outcome was carer self-efficacy, with secondary outcomes focused on caregiver preparedness and carer tasks/needs. Analysis focused on three outcome measures (taken at baseline and 6 weeks) and feasibility/acceptability qualitative data. Setting and participants: A single specialist palliative care service. Eligible informal caregivers were those of patients registered with the outpatient or community service, where the patient had a prognosis of ⩾12 weeks, supporting someone with nutrition/ hydration and/or pain management needs, proficient in English and no major mental health diagnosis. Results: Two modules were developed and tested (nutrition/hydration and pain management) with 18 caregivers. The materials did not have a statistically significant impact on carer self-efficacy. However, statistically significant improvements were observed on the two subsidiary measures of (1) caregiving tasks, consequences and needs (p = 0.03, confidence interval: 0.72, 9.4) and (2) caregiver preparedness (p = 0.001, confidence interval: −1.22, −0.46). The study determined that distance learning is acceptable and feasible for both caregivers and healthcare professionals. Conclusion: Distance education improves caregiver preparedness and is a feasible and acceptable approach. A two-arm trial would determine whether the materials benefitted caregivers and patients compared to a control group not receiving the materials. Additional modules could be fruitfully developed and offered
dc.format.extent581-588
dc.publisherSage
dc.relation.ispartofPalliative Medicine
dc.subjectPalliative Care
dc.subjectCaregivers
dc.subjectDistance Education
dc.subjectPain Management
dc.subjectNutritional Sciences
dc.titleDistance education methods are useful for delivering education to palliative caregivers: A single-arm trial of an education package (PalliativE Caregivers Education Package)
dc.typearticle
dcterms.accessRightsrestricted
dc.description.facultysch_nur
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dc.description.volume32
dc.description.ispublishedpub
dc.description.eprintid4880
rioxxterms.typearticle
refterms.dateFCA2017-12-06
refterms.dateFCD2017-09-19
qmu.authorHaraldsdottir, Erna
qmu.centreCentre for Person-centred Practise Research
dc.description.statuspub
dc.description.number2


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