Browsing by Person "Chouliara, Zo"
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Item Listening to Fathers of Sons with Duchenne Muscular Dystrophy(Australian Institute of Male Health and Studies., 2015) Cunniff, A. L.; Chisholm, Vivienne; Chouliara, ZoDuchenne Muscular Dystrophy (DMD) affects the entire family, however, most studies concern maternal adjustment with fathers' adjustment largely overlooked. To investigate experiences of fathers of sons with Duchenne Muscular Dystrophy (DMD) interviews were held with 15 fathers of a son with DMD, from across the UK. 55 fathers from an associated study also provided written accounts. Grounded theory methodology was used to evaluate the data. Four key themes emerged: 1) loss and acceptance; 2) support versus isolation; 3) fight for resources and 4) race against time. Fathers described the impact of emotional/behavioural factors, which were not routinely addressed by professionals. Findings emphasise importance of person-centred care, indicating how needs could be met, from fathers' perspectives.Item Perceptions and experiences about chlamydia in young women in Scotland: Knowledge, condon use and access to health services: a pilot qualitative study(British Psychological Society, 2006) Chouliara, Zo; Karatzias, A.; Goulbourne, Alison; Smart, H.Chlamydia trachomatis is a sexually transmitted infection that, despite being largely asymptomatic, can have serious effects on women's health, including inflammatory pelvic disease and even infertility. Despite recent increase in the rate of Chlamydia infection especially in young women, research in this area in the UK and Scotland in particular is rather limited. As a result our understanding of the views of this high-risk group regarding Chlamydia and measures to protect from infection (e.g. condom use) is very limited.. This on-going pilot study will focus on the views and experiences of young women in Scotland regarding Chlamydia. Twelve semi-structured individual interviews will be conducted with female university students, addressing knowledge about Chlamydia, views about use of condoms as protection against a Chlamydia infection and about access to sexual health services. It is envisaged that the findings will provide important information on this important health issue in a high-risk population group. It is anticipated that such issues will be examined in depth in the main study and that findings of the present research will inform future research and policy in this area.Item Post-traumatic symptomology in parents of premature infants: a systematic review of the literature(2007) Karatzias, A.; Chouliara, Zo; Maxton, F.; Freer, Y.; Power, K. G.The emotional distress resulting from the experience of giving birth to a preterm infant (gestational age <37 weeks) and the subsequent neonatal unit hospitalisation may be a traumatic experience for parents. In the present systematic literature review, studies on parental posttraumatic symptomatology following birth of a premature infant were reviewed. A total of 5 studies were indentified. All studies reviewed found that posttraumatic symptomatology is quite common in parents or primary caregivers of premature infants. However, methodological weaknesses of relevant studies (e.g. use of convenience samples, lack of pre-delivery assessments) make it difficult to draw consistent conclusions regarding prevalence of posttraumatic symptomatology in this population group or whether the experience of a premature birth could be responsible for the development of PTSD. Directions for future research are discussed.Item Predicting general well-being from self-esteem and affectivity: An exploratory study with Scottish adolescents(Springer Verlag, 2006-09-12) Karatzias, A.; Chouliara, Zo; Power, K. G.; Swanson, V.The present study investigated the association between the personality constructs of self-esteem/affectivity and General Well-Being (GWB) in Scottish adolescents. A total of 425 secondary school pupils completed the P.G.I. General Well-Being Scale [Verma et al. Ind J. Clin. Psychol. 10 (1983) 299], the Hare Self-esteem Scale (HSES) [Hare, The Hare General and Area-Specific (School, Peer, and Home) Self-esteem Scale. Unpublished manuscript, Department of Sociology, SUNY Stony Brook, New York, mineo, 1985] and the Positive and Negative Affect Schedule (PANAS) [Watson et al. J Personal Soc Psychol 54 (1988a) 1063]. Combined self-esteem, positive and negative affectivity, age and gender accounted for 49.7% of the total GWB variance, 24.9% of the physical well-being variance, 41.6% of the mood/affect well-being variance, 33.3% of the anxiety well-being variance and 44.3% of the self/others well-being variance. Home self-esteem was found the strongest predictor of mood/affect and self/others well-being domains as well as well-being total. It was also the second best predictor of anxiety well-being domain. School self-esteem was the strongest predictor of physical well-being, whereas negative affectivity was the strongest predictor of anxiety well-being domain. However age and gender were not significantly associated with GWB, total or domain specific. The study adds to previous evidence regarding the high association between GWB and personality factors in adult and adolescent populations. Directions for future research are discussed.Item The perspectives of stakeholders of intellectual disability liaison nurses: a model of compassionate, person-centred care(Wiley, 2016-02-11) Brown, Michael; Chouliara, Zo; MacArthur, Juliet; McKechanie, Andrew; Mack, Siobhan; Hayes, Matt; Fletcher, JoanAims and objectives To investigate the experiences of patients with intellectual disabilities, family and paid carers regarding the role of liaison nurses and the delivery of compassionate, person-centred care. From this to propose a model of person-centred care embedded in these experiences. Background People with intellectual disabilities have a high number of comorbidities, requiring multidisciplinary care, and are at high risk of morbidity and preventable mortality. Provision of compassionate, person-centred care is essential to prevent complications and avoid death. Design A qualitative design was adopted with Interpretative Phenomenological Analysis for data analysis. Methods Semistructured interviews and focus groups were conducted. Data were analysed with a focus on compassionate, person-centred care elements and components. Themes were modelled to develop a clinically meaningful model for practice. Results Themes identified vulnerability, presence and the human interface; information balance; critical points and broken trust; roles and responsibilities; managing multiple transitions; 'flagging up' and communication. Conclusions The findings provide the first 'anatomy' of compassionate, person-centred care and provide a model for operationalising this approach in practice. The applicability of the model will have to be evaluated further with this and other vulnerable groups. Relevance to clinical practice This is the first study to provide a definition of compassionate, person-centred care and proposes a model to support its application into clinical practice for this and other vulnerable groups.