Browsing by Person "Hackett, Janine"

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Adolescent and Young Adult Rheumatology In Clinical Practice
(Springer Cham, 2025-04-16) Ciurtin, Coziana; Hackett, Janine; Ciurtin, Coziana; Hackett, Janine
This concise guide takes a practical approach to adolescent and young adult (AYA) rheumatology, encompassing the needs of any healthcare professional working with young people aged 10-24 years. Each chapter contains key management points for readers to readily access disease-specific management, as well as highlighting specific AYA issues and approaches which differ from paediatric and adult practice. Adolescent and Young Adult Rheumatology In Clinical Practice, 2nd Edition has been fully revised with the latest research and clinical findings in the field. The coverage in the book is comprehensive but concise and devised to act as a primary reference tool for AYA practice across the field of rheumatology. The book is designed for paediatric/adult rheumatologists, primary care physicians, nurses and allied health professionals to increase understanding of AYA related topics and enhance the delivery of developmentally appropriate rheumatology health care.
Beyond the textbook: capturing diverse student voices to envisage future possibilities through creative education
(Royal College of Occupational Therapists, 2024-08) Hackett, Janine; Rushforth, Molly; Kinsella, Niamh
An evaluation of paediatric hand and upper limb assessment tools within the framework of the World Health Organisation International Classification of Disability, Functioning and Health
(SAGE Publications, 2015-03-16) Aslam, Riffat; Van Bommel, Annelotte; Southwood, Taunton; Hackett, Janine; Jester, Andrea
Introduction Evaluation of hand function has traditionally focused on objective measurements involving strength and range of movement measurements. The World Health Organisation International Classification of Disability, Functioning and Health (ICF) framework has introduced a more patient-orientated approach to assessment, incorporating four distinct areas of body structures, body functions, environment and activity limitation. These can be evaluated with both questionnaires and functional tests. Whereas there seems to be agreement over adult hand assessment, children’s hand assessment leaves involved therapists and clinician often wondering, which test to perform. The objective of this review was to evaluate the currently available childrens' hand and upper limb assessment tools within the framework of the ICF. Method A review of 19 of the most commonly used paediatric hand and upper limb assessment tools in the context of the components of the ICF. The International Classification of Disability, Functioning and Health linking rules composed by Cieza et al. were used in order to map each of the meaningful concepts in these assessment tools to the domains of the ICF. Results The activities domain of the ICF was found to be well represented in all assessment tools. Four out of 19 assessment tools had items that mapped to the environment domain. The highest number of different concepts mapped was found in musculoskeletal questionnaires. The lowest number of concepts was found in the pegboard tests. Conclusion Tests are often combined to attempt to cover as many aspects of the ICF yet our findings show that this may not always be achieved. Clinicians and therapists must be aware that in order to get a more complete overview of a child’s hand and upper limb functioning sometimes time- and resource-consuming tests have to be combined.
The evidence base for transition is bigger than you might think
(BMJ Publishing Group, 2015-12-01) McDonagh, Janet E; Hackett, Janine; McGee, Marie; Southwood, Tauny; Shaw, Karen L
Friends United: An Evaluation of an Innovative Residential Self-Management Programme in Adolescent Rheumatology
(SAGE Publications, 2005) Hackett, Janine; Johnson, Bernadette; Shaw, Karen L.; McDonagh, Janet E.
Independence in activities of daily living, self-advocacy and peer support are important aspects of adolescent development. These skills are potentially affected by chronic rheumatic diseases and are worthy of attention by occupational therapists and other members of the multidisciplinary team. An innovative 4-day residential programme for young people diagnosed with chronic rheumatic disease, known as the ‘Independence Break’, was evaluated in order to determine its perceived benefits. The participants were invited to complete a brief evaluation form immediately after the trip to determine the benefits of participation in the programme. The levels of continuing social contact within the group were established 4 months later during a subsequent telephone call. Thirty young people (median age 14 years) attended the 4-day programme and reported friendship and improved performance in activities of daily living as the major benefits. The majority stayed in touch with at least one other person, with more girls staying in touch than boys. The preferred method of communication was text messaging. Overall, the programme was perceived to be a valuable experience and offered the young people an opportunity to develop informal peer support networks. The potential of text messaging within adolescent rheumatology is also highlighted.
Growing up in school with a chronic condition
(MA Healthcare Ltd, 2008) McDonagh, Janet E; Hackett, Janine
School is a very important time for children and adolescents, and it is important for them to attend for both social and educational needs. Increasing numbers of young people have special health care needs, which need to be addressed in schools to stop education being disrupted.
Joint restriction in an unhappy teenager
(BMJ Publishing Group, 2005) Davis, PJC; Hackett, Janine; Johnson, K; McDonagh, JE
Juvenile Idiopathic Arthritis
(Elsevier Health Sciences, 2010) Hackett, Janine; Johnson, B; Dziedzic, Krysia; Hammond, Alison
Juvenile Idiopathic Arthritis
(John Wiley and Sons Ltd, 2002) Hackett, Janine; Swee Hong, C; Howard, L
Making connections, getting connected. Peer support and chronic rheumatic disease
(Taylor & Francis Inc, 2008) Hackett, Janine; Johnson, B; McDonagh, J; White, P
P175 Work Ready Champions for Young People: the role of occupational therapy in addressing the pre-vocational and early-employment needs of young people with long term health conditions [poster]
(Oxford University Press, 2022-05) Hackett, Janine; Lunt, Laura; Pidgeon, Claire; Farre, Albert; McDonagh, Janet
P55 Work ready champions for young people: the role of occupational therapy in addressing the pre-vocational and early-employment needs of young people with long term health conditions [poster]
(Oxford University Press (OUP), 2022-09-28) Pidgeon, Claire; Hackett, Janine; Lunt, Laura; Farre, Albert; McDonagh, Janet
Abstract Introduction/Background Developing a vocational identity is an important part of adolescent development and vocational morbidities have been recognized in young people with long term health conditions including rheumatic disease. Challenges in educational settings and/or workplaces have been reported by young people. Young people have also identified this area to be a research priority. Occupational Therapy (OT) is well placed to assume a lead role in this area, as it is the only health profession that has occupation at the core of its philosophy and practice. Description/Method The aim of this study was to explore the pre-vocational and early-employment needs of adolescents and young adults with long term health conditions from the perspectives of OTs and to examine their current and potential role in addressing these needs. Methods A questionnaire was developed using Qualtrics software and piloted with two OTs and amended accordingly. A snowballing recruitment method via email and Twitter was employed. Initial contact was made via colleagues of the project team and cascaded to OT networks. Data included demographic, involvement in health care planning with education, perceived importance of addressing pre-vocational issues for young people, respondents’ knowledge and confidence, and the role of OT. Discussion/Results The survey received 130 responses, of which 76 responses had complete data available (59%). A complete case analysis approach was taken. The majority of respondents were in clinical roles, primarily working in hospital or community settings and duration in practice ranged from 10 months to 40+ years. The perceived importance of addressing a wide range of vocational issues was consistently greater than the perceived knowledge and confidence of the professionals to address these. The majority of respondents (75%) perceived a need to address vocational issues for young people in their setting although only 22% reported that there was a designated member of their multidisciplinary team who would address these. The majority of such personnel identified by respondents were OTs but also included youth workers, education officer in the youth justice service, social worker. 63% routinely assessed productive/vocational occupations such as employment/education. Half of respondents (51%) did not know where to signpost/refer young people for vocational/employment advice. The majority (92%) reported not having any training in addressing vocational/employment issues specifically for young people aged 10-24 years and only 20% reported training in this area with adults. The majority (70%) however did perceive a difference in providing such advice to young people compared to adults. The main perceived barrier to addressing this area in practice was limited clinical time. Key learning points/Conclusion This study echoes previous calls for vocational issues to be addressed with young people with long-term health conditions and highlights the need for this to be addressed in both training and service provision.
Perceptions of Play and Leisure in Junior School Aged Children with Juvenile Idiopathic Arthritis: What are the Implications for Occupational Therapy?
(SAGE Publications, 2003) Hackett, Janine
Play is the dominant occupation in childhood and is recognised as having an important role in wellbeing. Past research suggests that children with a disability experience a variety of barriers to engagement in play. Despite this, play is often not assessed as a specific area of occupational performance. This qualitative study aimed to explore the perceptions of play and leisure in junior school aged children with juvenile idiopathic arthritis. Twelve children between the ages of 7 years and 11 years were interviewed in order to uncover the barriers to engagement in play and leisure and to consider the implications, if any, for occupational therapy. The results showed that all children, regardless of disease activity, reported difficulty in engaging in play and leisure activities. The symptoms of the disease, the treatment regimes and their side-effects, and psychosocial factors were all reported to affect play and leisure experiences. The children also reported that play behaviours were often restricted by parents, friends and school personnel. Fear of damage and unclear communication about the effects of activity also resulted in self-imposed restrictions, which further limited play experiences. Although the children reported a number of coping strategies to deal with these difficulties, they reported more indoor play and engagement in sedentary activities which often gave rise to feelings of being different, sadness and loneliness.
Physiotherapy and occupational therapy for juvenile chronic arthritis: custom and practice in five centres in the UK, USA and Canada
(Oxford University Press, 1996-07-01) Hackett, Janine; Johnson, B,; Parkin, A.; Southwood, T.
Physiotherapy and occupational therapy are widely accepted as being of central importance for the treatment of juvenile chronic arthritis (JCA). However, these approaches have rarely been subject to critical scrutiny. The aims of this report are to highlight some of the inter-centre similarities and differences observed in the implementation of physical and occupational therapy for JCA, and to emphasize the need for scientifically controlled research in this area. During a series of visits to several paediatric rheumatology units in the UK, USA and Canada, three aspects of the service were noted: treatment philosophy, physical interventions used for the treatment of JCA and quality-of-life and independence training activities. There was general consensus with the philosophy that early physical intervention was a vital part of the treatment plan for JCA, although all therapists were concerned that compliance with treatment modalities was poor. Differences between units in the approach to acute arthritis, the use of foot orthoses and wrist splints, the treatment of joint contractures and the use of general quality-of-life training activities were noted. Although it was widely recognized that controlled research into the efficacy of physical intervention was needed, no centre had a co-ordinated plan for such investigations.
The Prevocational and Early Employment Needs of Adolescents with Juvenile Idiopathic Arthritis: The Adolescent Perspective
(SAGE Publications, 2006) Shaw, KL; Hackett, Janine; Southwood, TR; McDonagh, JE
The purpose of this study was to explore the prevocational needs of adolescents with juvenile idiopathic arthritis (JIA) from their own perspectives. A focus group discussion was undertaken with eight adolescents with JIA (14.2–16.6 years) attending one United Kingdom hospital. The topics of interest were (i) attitudes towards education, prevocational readiness and employment in relation to JIA; (ii) perceived barriers; (iii) coping strategies; and (iv) preferred sources of support. The data were analysed according to standardised procedures that included data reduction, data display, conclusion drawing and conclusion verifying. The provision of vocational support for young people with JIA was reported to be uncoordinated, limited and unresponsive to individual needs. A recurrent theme was that professionals generally underestimated adolescents' educational and vocational potential. This was felt to be true of teachers, careers advisers, admissions personnel at colleges and universities and potential employers. Most adolescents worried about discrimination and those in whom the JIA was not visible felt a dilemma about disclosure to potential employers. The current framework of careers advice appeared to have failed the adolescents in this study who, in the absence of satisfactory support, found themselves consulting health professionals instead. Greater careers advice support for adolescents and professionals is warranted.
The Prevocational and Early Employment Needs of Adolescents with Juvenile Idiopathic Arthritis: The Occupational Therapy Perspective
(SAGE Publications, 2006) Shaw, KL; Hackett, Janine; Southwood, TR; McDonagh, JE
The purpose of the study was to explore the prevocational needs of adolescents with juvenile idiopathic arthritis (JIA) from the perspective of occupational therapists and to examine the role of occupational therapy in addressing these. A questionnaire was distributed to members of occupational therapy organisations (n = 494) to assess the perceived importance of addressing prevocational issues for adolescents with JIA and the respondents' knowledge, confidence and perceived role. The questionnaire was completed by 175 (35.4%) individuals. The results showed that although the occupational therapists felt that they were an appropriate profession to address the vocational needs of adolescents, they reported limited knowledge and confidence to do so. Significant unmet training needs were highlighted. This study echoes previous calls for vocational issues to be addressed within adolescent rheumatology and provides evidence that occupational therapy is well placed to coordinate this area of need.
The process of transition
(Royal College of Occupational Therapists, 2006) Hackett, Janine
The transformative power of occupation
(Royal College of Occupational Therapists, 2021) Hackett, Janine; Murphy, J; O'Reilly, O
Transitional Care
(Springer Cham, 2025-04-16) Gossens, Lucy; Hackett, Janine; Rajabally, Hanaa; Ammerlaan, Judy; Ciurtin, Coziana; Hackett, Janine
Transitional care continues to be a neglected area of practice in both adult and children’s services, with persisting confusion between the concepts of transition and transfer, often leading to unsatisfactory experiences and poorer long-term outcomes for adolescents and young adults (AYA). Unlike transfer, which is a one-off event, transitional care is a gradual, coordinated and developmentally appropriate, holistic approach, that not only prepares the young person for the eventual transfer to adult services, but attends to wider psychosocial aspects of their life, and other co-occurring transitions related to education, work, home life and other personal and culturally relevant transitions. Importantly, transitional care is person centred and responsive to the unique needs of the AYA which requires effective interpersonal skills, leadership, and flexibility on the part of the health provider, as well as robust policy and protocols. With permission, it also involves the young person’s care givers and supports them to develop their skills and knowledge in supporting AYA during this period. In practice, transitional care requires excellent multidisciplinary and multiagency teamwork, communication, and coordination, which should be planned and documented to ensure consistency with continued AYA support and skill development. In this chapter we briefly outline key components of transitional care and how this might be implemented in a practice setting.
Waiting lists in Occupational Therapy
(National Association of Paediatric Occupational Therapists, 2002) Hackett, Janine