Browsing by Person "Kendall, Marilyn"

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Challenging the perception of death and dying through documentary film making in a hospice
(BMJ Publishing Group Limited, 2013-10-01) Haraldsdottir, Erna; Hardie, Amy; Kendall, Marilyn
Background Health promoting palliative care is a relatively new concept in palliative care that aims to increase public awareness and open discussion in relation to death and dying. A year long collaboration between a documentary film artist and patients and staff in a Scottish hospice addressed these aims. They produced 20 short films and a character led documentary feature film showing different strategies that led to increased vitality at the end of life.
Integrating lived experiences of out-of-hours health services for people with palliative and end-of-life care needs with national datasets for people dying in Scotland in 2016: A mixed methods, multi-stage design
(SAGE, 2022-03-30) Mason, Bruce; Carduff, Emma; Laidlaw, Sheonad; Kendall, Marilyn; Murray, Scott A.; Finucane, Anne; Moine, Sebastien; Kerssens, Joannes; Stoddart, Andrew; Tucker, Sian; Haraldsdottir, Erna; Ritchie, Sir Lewis; Fallon, Marie; Keen, Jeremy; Macpherson, Stella; Moussa, Lorna; Boyd, Kirsty
Background:: Unscheduled care is used increasingly during the last year of life by people known to have significant palliative care needs. Aim:: To document the frequency and patterns of use of unscheduled healthcare by people in their last year of life and understand the experiences and perspectives of patients, families and professionals about accessing unscheduled care out-of-hours. Design:: A mixed methods, multi-stage study integrating a retrospective cohort analysis of unscheduled healthcare service use in the last year of life for all people dying in Scotland in 2016 with qualitative data from three regions involving service users, bereaved carers and general practitioners. Setting:: Three contrasting Scottish Health Board regions and national datasets for the whole of Scotland. Results:: People who died in Scotland in 2016 (n = 56,407) had 472,360 unscheduled contacts with one of five services: telephone advice, primary care, ambulance service, emergency department and emergency hospital admission. These formed 206,841 individual continuous unscheduled care pathways: 65% starting out-of-hours. When accessing healthcare out-of-hours, patients and carers prioritised safety and a timely response. Their choice of which service to contact was informed by perceptions and previous experiences of potential delays and whether the outcome might be hospital admission. Professionals found it difficult to practice palliative care in a crisis unless the patient had previously been identified. Conclusion:: Strengthening unscheduled care in the community, together with patient and public information about how to access these services could prevent hospital admissions of low benefit and enhance community support for people living with advanced illness.
Stories from people living with frailty
(Cambridge University Press, 2019-08-09) Lloyd, Anna; Haraldsdottir, Erna; Kendall, Marilyn; Murray, Scott A.; McCormack, Brendan
We describe the findings of a qualitative longitudinal interview study of a group of initially community dwelling frail older people, their informal and formal carers. We used a narrative approach to explore the role that narrative may have for people living with frailty. This has been less explored comparative to the experiences of those living with chronic illness. The frail older people told stories of their experiences that revealed three distinct shapes or typologies. These were either stable, unbalancing or overwhelmed and related to how the person managed to adapt to increasing challenges and losses and to reintegrate their sense of self into a cohesive narrative. Each is illustrated by an individual case story. Frailty is described as both biographically anticipated yet potentially biographically disruptive as older people may struggle to make sense of their circumstances without a clear single causative factor. Findings are discussed in relation to biographical disruption and reconstruction in chronic illness and the rhetoric around ‘successful ageing’. We conclude by drawing attention to the complex individual and social factors that contribute to the experience of living with frailty in later life.
The psychosocial effects of exercise and relaxation classes for persons surviving a stroke
(Canadian Association of Occupational Therapists, 2009-04) Carin-Levy, Gail; Kendall, Marilyn; Young, Archie; Mead, Gillian
Background. This study was set up to explore unexpected findings emergent from a randomized controlled trial of exercise versus relaxation post-stroke. Purpose. Stroke survivors' experiences of taking part in exercise and relaxation classes were explored. Methods. In-depth, semi-structured interviews carried out with 14 community-dwelling stroke survivors in Edinburgh. The informants previously participated in a randomized exploratory trial of exercise versus relaxation. Findings. The classes motivated participants to take part in other purposeful activities, to continue to practice what they had learned, and/or to attend another class in the community. Class participation also led to an improvement of self-perceived quality of life, specifically, improved confidence, physical ability, psychosocial functioning, and a sense of empowerment. Implications. Taking part in either exercise or relaxation classes after stroke can contribute to improved self-perceived quality of life, improved psychosocial functioning, and improved motivation to take an active role in the recovery process. Rsum Description. Cette tude a t mene en vue d'examiner les rsultats imprvus d'un essai contrl alatoire comportant des sances d'exercice et des sances de relaxation chez des patients ayant subi un accident vasculaire crbral (AVC). But. Les expriences vcues par des survivants d'un AVC ayant particip des sances d'exercice ou des sances de relaxation ont t tudies. Mthodologie. Des entrevues en profondeur semi-structures ont t menes auprs de 14 survivants d'un AVC vivant dans la collectivit Edinburgh. Les informateurs avaient particip auparavant un essai exploratoire alatoire comportant des sances d'exercice et des sances de relaxation. Rsultats. Les sances motivaient les participants participer d'autres activits significatives, continuer de mettre en pratique ce qu'ils avaient appris ou assister d'autres cours dans la communaut. La participation ces sances a galement permis aux participants d'amliorer leur perception face leur qualit de vie, en particulier d'amliorer leur confiance, leurs habilets physiques et leur fonctionnement psychosocial et d'avoir un sentiment de pouvoir sur leur vie. Consquences. La participation des sances d'exercice ou de relaxation la suite d'un AVC peut contribuer l'amlioration de la perception de la qualit de vie, du fonctionnement psychosocial et de la motivation participer activement au processus de rtablissement.