Browsing by Person "Morrison, J."

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Brief Encounter: collaborative research between academic researchers and older researchers.
(2006) Miller, E.; Morrison, J.; Cook, Ailsa
The discovery that genetic factors are involved in the aetiology of colorectal cancer, has prompted many relatives of affected individuals to seek genetic counselling and screening. This paper describes the demand for genetic services by families with colorectal cancer in south-east Scotland, their expectations and views of the service offered. The annual referral rate over the 21-month study period, for patients with a family history of colorectal cancer, was 0.11 per 1000 patients on general practitioner lists. This is one third of the rate for patients with a family history of breast cancer and in comparison with the breast cancer group, relatives of colorectal cancer patients were significantly older and less socially deprived. Approximately one third were referred via a hospital specialist unit. One hundred patients were included in the study. Mean (± standard deviation) age was 43 (± 10.7 years), 75 were female and 31 were self referrals. Before the consultation, almost half the patients had an inflated perception of their risk and there was little change at follow-up. There was an improvement in objective understanding after counselling which was sustained up to 6 months but only two thirds remembered their objective risk accurately. Most patients were satisfied with the consultation. Our findings suggest the need to educate individuals, in particular men, younger people and the more socially deprived, about the relevance of a family history of colorectal cancer and to facilitate patients’ comprehension of their risk status.
Challenges and Strategies in Collaborative Working with Service User Researchers: Reflections from the Academic Researcher
(2006) Miller, E.; Cook, Ailsa; Alexander, H.; Cooper, Sally-Ann; Hubbard, G.; Morrison, J.; Petch, Alison
In this article, the authors consider the lessons to be drawn from a collaborative two year research project involving academic researchers working alongside three service user research organisations. The joint working on the project involved designing a research tool and conducting interviews with users of services that were provided by health and social services partnerships. Questions arising from this project involved consideration of the advantages and challenges of collaborative work. Our experience has highlighted the necessity of carefully considering a range of factors, including the ethos and goals of each organisation, as well as the skills and experience of the individuals involved, in relation to the specific purpose of the research. The challenge for academic researchers is to find ways to meet a range of research aims and objectives, while negotiating roles in ways that avoid reinforcing power relations and disempowering service user researchers. Alongside consideration of the challenges involved, this reflective account also highlights some of the advantages of working with user researchers, and suggests ways of harnessing the enthusiasm and skills of service users, with the aim of capturing the unique perspective they bring to research.