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Family factors associated with participation of children with disabilities: A systematic review

dc.contributor.authorArakelyan, Stellaen
dc.contributor.authorMaciver, Donalden
dc.contributor.authorRush, Roberten
dc.contributor.authorO'Hare, Anneen
dc.contributor.authorForsyth, Kirstyen
dc.date.accessioned2018-11-07T12:23:31Z
dc.date.available2018-11-07T12:23:31Z
dc.date.issued2019-01-06
dc.date.updated2019-01-09; 2019-05-26
dc.descriptionQMU Research Centre: Fireflyen
dc.descriptionStella Arakelyan - orcid: 0000-0003-0326-707X https://orcid.org/0000-0003-0326-707X
dc.descriptionUpdate history: 2019-01-09 (Gold OA version deposited, article title updated, deposit exception, publication & AM embargo dates updated); 2018-12-12 (Corrected version of AM deposited)
dc.descriptionDonald Maciver - orcid: 0000-0002-6173-429X https://orcid.org/0000-0002-6173-429X
dc.description.abstractAIM: The aim of this review was to synthesise empirical evidence of family factors associated with participation of children with disabilities aged 5-12 years to inform the development of family-centred participation-fostering interventions. METHOD: A systematic search was performed for articles published in English between 2001 and 2017 in MEDLINE, PsycINFO, CINAHL, Scopus and ASSIA following the Preferred Reporting Items for Systematic Review and Meta-Analysis guidelines (registration no: CRD42017078202). Quality of evidence was appraised using the Research Triangle Institute Item Bank. Family factors associated with participation were identified and assessed using a multistage “semi-quantitative” approach. RESULTS: Thirty studies were included in the review. Four non-modifiable “status” factors consistently associated with participation were parental ethnicity, parental education, family type and family socio-economic status. Six modifiable “process” factors with consistent associations with participation were parental mental and physical health functioning, parental self-efficacy beliefs, parental support, parental time, family preferences and activity orientation. INTERPRETATION: Rehabilitation professionals should direct their focus towards modifiable family factors as primary targets for family-centred interventions. Strategies that can improve families’ access to information, counselling, and community support services are likely to support children’s participation by empowering families and optimizing their health and well-being.en
dc.description.ispublishedpub
dc.description.number5
dc.description.sponsorshipFunding: This research was completed as part of a PhD funded by Lothian National Health Service and Queen Margaret University, Edinburgh, Scotland.en
dc.description.statuspub
dc.description.urihttps://onlinelibrary.wiley.com/journal/14698749en
dc.description.volume61
dc.format.extent514-522
dc.identifier.citationArakelyan, S., Maciver, D., Rush, R., O'Hare, A. & Forsyth, K. (2019) Family factors associated with participation of children with disabilities: A systematic review. Developmental Medicine & Child Neurology, 61 (5), pp. 514-522.en
dc.identifier.issn1469-8749en
dc.identifier.urihttps://eresearch.qmu.ac.uk/handle/20.500.12289/9048
dc.identifier.urihttps://doi.org/10.1111/dmcn.14133
dc.language.isoenen
dc.publisherWileyen
dc.relation.ispartofDevelopmental Medicine & Child Neurologyen
dc.rights© 2018 The Authors. Developmental Medicine & Child Neurology published by John Wiley & Sons Ltd on behalf of Mac Keith Press.
dc.rights.licenseCreative Commons Attribution‐NonCommercial‐NoDerivatives License (CC BY-NC-ND 4.0)
dc.rights.urihttp://creativecommons.org/licenses/by-nc-nd/4.0/
dc.subjectDisabilityen
dc.subjectChilden
dc.subjectParticipationen
dc.subjectFamily Factorsen
dc.subjectReviewen
dc.titleFamily factors associated with participation of children with disabilities: A systematic reviewen
dc.title.alternativeFamily in the spotlight: a systematic review of family factors associated with participation of children with disabilities
dc.typeArticleen
dcterms.accessRightspublic
dcterms.dateAccepted2018-10-26
qmu.authorArakelyan, Stella
qmu.authorMaciver, Donald
qmu.authorRush, Robert
qmu.authorForsyth, Kirsty
refterms.accessExceptionNAen
refterms.dateDeposit2018-11-07
refterms.dateFCD2018-11-07
refterms.dateFreeToDownload2019-01-06
refterms.dateFreeToRead2019-01-06
refterms.dateToSearch2019-01-06
refterms.depositExceptionpublishedGoldOAen
refterms.panelUnspecifieden
refterms.technicalExceptionNAen
refterms.versionVoRen
rioxxterms.publicationdate2019-01-06
rioxxterms.typeJournal Article/Reviewen

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