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Nursing

Permanent URI for this collectionhttps://eresearch.qmu.ac.uk/handle/20.500.12289/24

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Author: search.filters.author.Haraldsdottir, ErnaHas files: No

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Now showing 1 - 6 of 6
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    Enhancing openness around death and dying thorough documentary film making in a hospice
    (Hayward Medical Communications, 2017-11) Haraldsdottir, Erna
    In this article I reflect my own journey in engaging with art in a hospice setting in order to enable one of Cicely Saunders’ key principles of facing death to be embedded in practice. Exploring the possibility of use of art in a hospice setting was triggered by findings from my own PhD work on ‘being with’ that highlighted the difficulty of engaging with death and dying in a hospice. This, later, lead to an art project I undertook in another hospice with a documentary film maker culminating in making of the film ‘7 Songs for a Long Life’.
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    Challenging the perception of death and dying through documentary film making in a hospice
    (BMJ Publishing Group Limited, 2013-10-01) Haraldsdottir, Erna; Hardie, Amy; Kendall, Marilyn
    Background Health promoting palliative care is a relatively new concept in palliative care that aims to increase public awareness and open discussion in relation to death and dying. A year long collaboration between a documentary film artist and patients and staff in a Scottish hospice addressed these aims. They produced 20 short films and a character led documentary feature film showing different strategies that led to increased vitality at the end of life.
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    European insight: The Palliative Care Research Society: facilitating research in the UK
    (Hayward Medical Communications, 2011) Haraldsdottir, Erna
    Research has always been an important part of the development of palliative care. However, embedding research in the culture of palliative care is a continuous challenge. While there is no doubt that there has been considerable progress in this respect over recent years, the number of people engaged in palliative care research is relatively low.
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    Health-promoting palliative care arrives in Scotland
    (Hayward Medical Communications, 2010) Haraldsdottir, Erna; Clark, Pam; Murray, Scott A.
    Openness about death and dying has been seen as beneficial for dying patients and their families ever since the pioneering work of Cicely Saunders in the 1960s. Despite this, death and dying is still a taboo subject in most European countries. In 2003, a survey of the Scottish public reported that most people felt society did not discuss death and dying in a 'realistic way' and considered the subject of death as taboo. The survey called for further engagement with the public to promote open discussion about death and dying.
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    Care for the dying mother-to-be
    (Hayward Medical Communications, 2002) Mander, Rosemary; Haraldsdottir, Erna
    The childbearing woman who has a life-threatening illness encounters conflicting responses within herself and in others. While pregnancy engenders pleasurable optimism in our pronatalist society, life-threatening conditions can induce pessimistic horror. The significance of this may be judged from the incidence of cancer in pregnancy (one in 1,000-1,500 live births). There are many complex issues arising out of this situation - both for those personally affected and for formal carers. These issues cause the childbearing woman, and those near to her, to face many difficult decisions. The palliative care approach includes non-hierarchical care and suggests that decisions should be taken jointly with the woman and, possibly, those close to her.
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    Goal setting in palliative care: A structured review
    (Maney, 2014-12) Boa, Sally; Duncan, Edward A. S.; Haraldsdottir, Erna; Wyke, Sally
    Background Palliative care and rehabilitation both aim to support patients to live as actively as possible. Goal setting has been identified in health policy and clinical guidelines as a mechanism to achieve this. While goal setting is well established in traditional rehabilitation, it is unclear how it should be implemented within palliative care where people are faced with diminishing abilities. Aim To identify and synthesize published literature regarding goal setting in palliative care. Method Electronic searches were carried out on MEDLINE, PSYCHINFO, EMBASE, CINAHL, ASSIA, and Google Scholar databases between November 2010 and January 2011. Papers were included if they focused on patient-centred goal setting in palliative care. No restrictions were placed on study design or type of paper. Papers were classified according to the type and design and research papers were quality appraised. Papers were read and analysed using framework analysis. Findings Sixteen papers met the inclusion criteria. Three themes were identified: 1. Definitions, process, and functions of goal setting; 2. The challenges of delivering goal setting; 3. Theories underpinning goal setting. Conclusions Goal setting is recognized as an important component of patient-centred palliative care, but there is no agreement regarding 'best practice' and clinicians face particular challenges when trying to set goals with patients in this context. Little attention has been paid to developing a robust, theory-based approach to goal setting in this setting. Hope theory and theories of how people adapt to life-threatening illness could inform the process of goal setting in palliative care.