Nursing
Permanent URI for this collectionhttps://eresearch.qmu.ac.uk/handle/20.500.12289/24
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Item Palliative care for patients with heart failure: a cross-sectional study among nursing healthcare professionals(De Gruyter, 2023-01-30) Kmetec, Sergej; Fekonja, Zvonka; Gönc, Vida; McCormack, BrendanBackground: Acute heart failure is a problem that the public healthcare system faces worldwide. Despite improving healthcare systems and the resulting treatment, the disease's incidence and frequency has increased annually. Therefore, patients with acute heart failure often seek help in the emergency room, where nursing health professionals encounter the condition early or late. In the final stages, they need to focus on providing palliative care to such patients. The chapter aims to determine the nursing healthcare professionals' knowledge, perceptions, and attitudes towards palliative care in patients with heart failure in the emergency and cardiology departments. Methods: A cross-sectional study was carried out. The survey took place in August 2019 involving nursing healthcare professionals. Results: Of 104 nurses, 50% (n = 52) had received training in palliative care throughout their education and 7.7% (n = 8) had received additional training. Nursing healthcare professionals in both the emergency and the cardiology departments have similar knowledge about palliative care. With regard to the perception of implementing palliative care, the data shows a statistically significant difference between both departments. Furthermore, statistically significant differences between the emergency and cardiology departments have been found in some statements regarding their attitudes, namely that there remains a need for palliative care in treating patients with heart failure. Discussion and conclusion: We believe that the knowledge of palliative care in the cardiology and emergency departments is good, and that there are no major differences between the knowledge and departments. However, further training is required to improve the healthcare staff's knowledge, perceptions, and attitudes towards palliative care in patients with heart failure. ©2023 the author(s), published by De Gruyter. All rights reserved.Item An analysis of the construct validity and responsiveness of the ICECAP-SCM capability wellbeing measure in a palliative care hospice setting(BioMed Central, 2022-07-08) Myring, Gareth; Mitchell, Paul Mark; Kernohan, W. George; McIlfatrick, Sonja; Cudmore, Sarah; Finucane, Anne M.; Graham-Wisener, Lisa; Hewison, Alistair; Jones, Louise; Jordan, Joanne; McKibben, Laurie; Muldrew, Deborah H. L.; Zafar, Shazia; Coast, JoannaAbstract: Background: For outcome measures to be useful in health and care decision-making, they need to have certain psychometric properties. The ICECAP-Supportive Care Measure (ICECAP-SCM), a seven attribute measure (1. Choice, 2. Love and affection, 3. Physical suffering, 4. Emotional suffering, 5. Dignity, 6. Being supported, 7. Preparation) developed for use in economic evaluation of end-of-life interventions, has face validity and is feasible to use. This study aimed to assess the construct validity and responsiveness of the ICECAP-SCM in hospice inpatient and outpatient settings. Methods: A secondary analysis of data collated from two studies, one focusing on palliative care day services and the other on constipation management, undertaken in the same national hospice organisation across three UK hospices, was conducted. Other quality of life and wellbeing outcome measures used were the EQ-5D-5L, McGill Quality of Life Questionnaire – Expanded (MQOL-E), Patient Health Questionnaire-2 (PHQ-2) and Palliative Outcomes Scale Symptom list (POS-S). The construct validity of the ICECAP-SCM was assessed, following hypotheses generation, by calculating correlations between: (i) its domains and the domains of other outcome measures, (ii) its summary score and the other measures’ domains, (iii) its summary score and the summary scores of the other measures. The responsiveness of the ICECAP-SCM was assessed using anchor-based methods to understand change over time. Statistical analysis consisted of Spearman and Pearson correlations for construct validity and paired t-tests for the responsiveness analysis. Results: Sixty-eight participants were included in the baseline analysis. Five strong correlations were found with ICECAP-SCM attributes and items on the other measures: four with the Emotional suffering attribute (Anxiety/depression on EQ-5D-5L, Psychological and Burden on MQOL-E and Feeling down, depressed or hopeless on PHQ-2), and one with Physical suffering (Weakness or lack of energy on POS-S). ICECAP-SCM attributes and scores were most strongly associated with the MQOL-E measure (0.73 correlation coefficient between summary scores). The responsiveness analysis (n = 36) showed the ICECAP-SCM score was responsive to change when anchored to changes on the MQOL-E over time (p < 0.05). Conclusions: This study provides initial evidence of construct validity and responsiveness of the ICECAP-SCM in hospice settings and suggests its potential for use in end-of-life care research.Item Patient centred goal setting in a hospice setting: A comparative case study of how healthcare practitioners understand and use goal setting in practice(Mark Allen Group, 2018-04-02) Boa, Sally; Duncan, Edward; Haraldsdottir, Erna; Wyke, SallyAim: To investigate healthcare practitioners' understanding and practice of patient centred goal setting in a hospice. Methods: A comparative case study of 10 healthcare practitioners in one hospice. Nonparticipant observations (n=28), semi-structured interviews (n=10) and case-note analysis (n=67) were undertaken. Data were analysed using framework analysis. Results: Participants viewed goal setting as part of routine practice. However, goal setting focused around what was seen as important from the health practitioner's perspective rather than being person centred. Participants' goal setting practice was implicit and opportunities to support patients to pursue goals were missed. Participants emphasised problem solving and alleviating symptoms rather than focusing on patient priorities and establishing patient centred goals. Conclusion: While goal setting is valued, it is practiced in an implicit, practitioner centred and inconsistent manner. An explicit person centred goal setting process may support practitioners consistently help patients to identify their priorities and enhance their quality of life.