Queen Margaret University logo
    • Login
    View Item 
    •   QMU Repositories
    • eResearch
    • School of Health Sciences
    • CASL
    • View Item
    •   QMU Repositories
    • eResearch
    • School of Health Sciences
    • CASL
    • View Item
    JavaScript is disabled for your browser. Some features of this site may not work without it.

    The perspectives of stakeholders of intellectual disability liaison nurses: a model of compassionate, person-centred care

    View/Open
    eResearch%204289.pdf (172.7Kb)
    Date
    2016-02-11
    Author
    Brown, Michael
    Chouliara, Zo
    MacArthur, Juliet
    McKechanie, Andrew
    Mack, Siobhan
    Hayes, Matt
    Fletcher, Joan
    Metadata
    Show full item record
    Citation
    Brown, M., Chouliara, Z., MacArthur, J., McKechanie, A., Mack, S., Hayes, M. & Fletcher, J. (2016) The perspectives of stakeholders of intellectual disability liaison nurses: a model of compassionate, person-centred care, Journal of Clinical Nursing, vol. 25, , pp. 972-982,
    Abstract
    Aims and objectives To investigate the experiences of patients with intellectual disabilities, family and paid carers regarding the role of liaison nurses and the delivery of compassionate, person-centred care. From this to propose a model of person-centred care embedded in these experiences. Background People with intellectual disabilities have a high number of comorbidities, requiring multidisciplinary care, and are at high risk of morbidity and preventable mortality. Provision of compassionate, person-centred care is essential to prevent complications and avoid death. Design A qualitative design was adopted with Interpretative Phenomenological Analysis for data analysis. Methods Semistructured interviews and focus groups were conducted. Data were analysed with a focus on compassionate, person-centred care elements and components. Themes were modelled to develop a clinically meaningful model for practice. Results Themes identified vulnerability, presence and the human interface; information balance; critical points and broken trust; roles and responsibilities; managing multiple transitions; 'flagging up' and communication. Conclusions The findings provide the first 'anatomy' of compassionate, person-centred care and provide a model for operationalising this approach in practice. The applicability of the model will have to be evaluated further with this and other vulnerable groups. Relevance to clinical practice This is the first study to provide a definition of compassionate, person-centred care and proposes a model to support its application into clinical practice for this and other vulnerable groups.
    Official URL
    http://dx.doi.org/10.1111/jocn.13142
    URI
    https://eresearch.qmu.ac.uk/handle/20.500.12289/4289
    Collections
    • CASL

    Queen Margaret University: Research Repositories
    Accessibility Statement | Repository Policies | Contact Us | Send Feedback | HTML Sitemap

     

    Browse

    All QMU RepositoriesCommunities & CollectionsBy YearBy PersonBy TitleBy QMU AuthorBy Research CentreThis CollectionBy YearBy PersonBy TitleBy QMU AuthorBy Research Centre

    My Account

    LoginRegister

    Queen Margaret University: Research Repositories
    Accessibility Statement | Repository Policies | Contact Us | Send Feedback | HTML Sitemap