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Occupational Therapy and Arts Therapies

Permanent URI for this collectionhttps://eresearch.qmu.ac.uk/handle/20.500.12289/25

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    Perspectives of Those with Lived Experience of Dementia and their Care Givers within the Cultural Context of Midlothian. A Narrative Study.
    (Queen Margaret University, 2012) Fairnie, Jane; Flockhart, Janice; Forsyth, Kirsty; Górska, Sylwia; Irvine, Linda; Maciver, Donald; Prior, Susan; Reid, Jenny; Whtehead, Jacqueline
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    Exploring the needs of people with dementia living at home reported by people with dementia and informal caregivers: A systematic review and meta-analysis
    (Taylor & Francis, 2019-12-03) Curnow, Eleanor; Rush, Robert; Maciver, Donald; Górska, Sylwia; Forsyth, Kirsty
    Objectives: To provide prevalence estimates of needs of people with dementia living at home, and to determine sources of variation associated with needs for this population.
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    Participation as means for adaptation in dementia: A conceptual model
    (Taylor & Francis, 2019-12-02) Górska, Sylwia; Maciver, Donald; Forsyth, Kirsty
    Objectives: There are a number of conceptual models of dementia, capturing a range of biopsychosocial factors. Few integrate the lived experience of dementia. The aim of this study was to develop a conceptualisation grounded in the first-hand accounts of living with the condition and reflecting its complexity.
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    Community‐based participation of children with and without disabilities
    (Wiley, 2019-11-25) Arakelyan, Stella; Maciver, Donald; Rush, Robert; O'Hare, Anne; Forsyth, Kirsty
    AIM To describe and compare the socio-demographic characteristics and community-based participation of children with and without disabilities.
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    Development and implementation of the CIRCLE Framework
    (Taylor & Francis, 2019-07-12) Maciver, Donald; Hunter, Cathleen; Adamson, Amanda; Grayson, Zoe; Forsyth, Kirsty; McLeod, Iona
    We report the implementation of a new framework supporting teacher practice for inclusion of children with disabilities in mainstream classrooms. Eight schools in one Scottish authority took part. Questionnaire, focus group and interview data were gathered. Results indicated that the framework was well-received and provided a useful resource for class teachers. The framework was perceived as a feasible method for supporting teachers and related personnel to think systematically about key issues relating to children with disabilities in the classroom. It was suggested that provision of a common language was supportive of collaborative working. Areas for revision included a system of navigation and simplification in the framework manual.
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    Participation of children with disabilities in school: A realist systematic review of psychosocial and environmental factors
    (Public Library of Science, 2019-01-29) Maciver, Donald; Rutherford, Marion; Arakelyan, Stella; Kramer, Jessica; Richmond, Janet; Todorova, Liliya; Romero-Ayuso, Dulce; Nakamura-Thomas, Hiromi; ten Velden, Marjon; Finlayson, Ian; O’Hare, Anne; Forsyth, Kirsty
    Background - In order to make informed decisions about how best to support children and young people with disabilities, effective strategies that facilitate active and meaningful participation in school are required. Clinical factors, diagnosis or impairments somewhat helpful in determining what should be provided in interventions. However, clinical factors alone will not offer a clear view of how to support participation. It is helpful then to look at wider psychosocial and environmental factors. The aim of this review was to synthesise evidence of psychosocial and environmental factors associated with school participation of 4–12 year old children with disabilities to inform the development of participation-fostering interventions.
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    Family factors associated with participation of children with disabilities: A systematic review
    (Wiley, 2019-01-06) Arakelyan, Stella; Maciver, Donald; Rush, Robert; O'Hare, Anne; Forsyth, Kirsty
    AIM: The aim of this review was to synthesise empirical evidence of family factors associated with participation of children with disabilities aged 5-12 years to inform the development of family-centred participation-fostering interventions. METHOD: A systematic search was performed for articles published in English between 2001 and 2017 in MEDLINE, PsycINFO, CINAHL, Scopus and ASSIA following the Preferred Reporting Items for Systematic Review and Meta-Analysis guidelines (registration no: CRD42017078202). Quality of evidence was appraised using the Research Triangle Institute Item Bank. Family factors associated with participation were identified and assessed using a multistage “semi-quantitative” approach. RESULTS: Thirty studies were included in the review. Four non-modifiable “status” factors consistently associated with participation were parental ethnicity, parental education, family type and family socio-economic status. Six modifiable “process” factors with consistent associations with participation were parental mental and physical health functioning, parental self-efficacy beliefs, parental support, parental time, family preferences and activity orientation. INTERPRETATION: Rehabilitation professionals should direct their focus towards modifiable family factors as primary targets for family-centred interventions. Strategies that can improve families’ access to information, counselling, and community support services are likely to support children’s participation by empowering families and optimizing their health and well-being.
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    Services for children with developmental co-ordination disorder: an evaluation against best practice principles
    (Taylor & Francis, 2016-01) Pentland, Jacqueline; Maciver, Donald; Owen, Christine; Forsyth, Kirsty; Irvine, Linda; Walsh, Mike; Crowe, Miriam
    Purpose: The National Health Service in Scotland published a best practice framework to support occupational therapists and physiotherapists to deliver effective services for children with developmental co-ordination disorder (DCD); however, adherence is variable. To highlight areas for development, this study compared the care pathway within a paediatric DCD service against the NHS Scotland framework. Methods: A partnership of researchers and clinicians based in the United Kingdom conducted a qualitative study with 37 participants (N = 13 interview participants, N = 24 workshop participants). In-depth interviews and/or workshops were used to map the DCD service against the NHS framework. Identified gaps were aligned with four key stages of the care pathway. Qualitative analysis software was used to analyse the data. Results: Core principles to guide future development were identified for each phase of the pathway. These core principles related to the NHS framework and focused on issues such as involving the family, defining clear pathways and enhancing children's participation. Participants identified potential strategies for service improvement such as developing community-based interventions and information provision. Conclusion: Challenges when providing services for children with DCD include confusing service pathways and poor partnership working. It is, therefore, important that clinicians utilise collaborative working strategies that support children's participation.Implications for RehabilitationThere are numerous challenges related to the implementation of best practice principles into the provision of therapy services for children with developmental coordination disorder (DCD).It is important that AHPs seek ways of engaging parents and educational professionals at all stages of the care pathway in order to ensure optimum service provision for the child.Addressing participation is an important aspect and community-based strategies may be particularly beneficial, both as a preventative activity and as an intervention approach. 2015 Informa UK Ltd.
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    Elements of life satisfaction amongst elderly people living in institutions in Malaysia: A mixed methodology approach
    (2010-12) Dahlan, A.; Nicol, Maggie; Maciver, Donald
    Background Changes in demographic characteristics, social structure and economic status have shifted the direction of care of elderly people in Malaysia. Subsequently, nursing homes and institutions for elderly people becoming a significant care option. The aim of this study is to identify the level of life satisfaction and to examine the elements of life satisfaction amongst the elderly people living in the institutions. Methods In this mixed methodology, a survey using translated version of Satisfaction with Life Scale (SWLS) was conducted to 82 participants who conformed to the inclusion criteria. Twenty participants who volunteered to discuss about their live experience regarding life satisfaction living in a public elderly institution in Malaysia. The participants were stratified according to age group and gender. Four focus groups were conducted and the Interpretative Phenomenological Analysis were used to identify the key themes emerged from the focus groups. Results The level of life satisfaction is equivalent to the norms and there is no statistical significant difference between the levels with the demographic variables. Two main themes were developed, contentment and acceptance, reflecting the elements of life satisfaction of the participants in the institution. Conclusion The findings are inconsistent with previous findings. However, it identified new elements of life satisfaction for elderly people in the institution.
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    Parental experiences of pediatric chronic pain management services
    (Nova Science Publishers, Inc., 2011) Maciver, Donald; Jones, D.; Nicol, Maggie
    An in-depth analysis of parents' experiences and perceptions of their child's pain management is required to understand best practice in this developing area. Aim: This qualitative study examined parents' experiences of paediatric chronic pain management services in the United Kingdom. Methods: A total of 12 participants (10 mothers, 2 fathers), across 10 families, were involved in the study (one family had two children with chronic pain). In-depth interviews were carried out. Data were subjected to an interpretive thematic analysis. Findings: Participants came to pain management services with similar expectations, however there were distinct differences between parents whose children had received in-patient versus out-patient pain management treatment. The mechanisms underlying this parental disenchantment are offered, and findings are discussed in light of the wider chronic pain literature. Recommendations for practitioners working in the field of chronic pain management are presented. Conclusions: Parents are important contributors to the success of pain management interventions, but they may find pain management principles counter-intuitive and incongruent with their perceived goals and needs. Based on this research, recommendations for nurses, and other professionals involved in pain management, are presented. 2011 Nova Science Publishers, Inc.