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The Institute for Global Health and Development

Permanent URI for this collectionhttps://eresearch.qmu.ac.uk/handle/20.500.12289/9

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Author: search.filters.author.Kielmann, KarinaHas files: No

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    Building social equity and person-centred innovation into the end TB response [Letter to the editor]
    (International Union Against Tuberculosis and Lung Disease, 2024-11-01) Engel, N.; Apolosi, I.; Bhargava, A.; Bhan, A.; Celan, C.; Mak, A.; Chikovore, J.; Chorna, Y.; Claassens, M.M.; Dagron, S.; Denholm, J.T.; Frick, M.; Furin, J.; Hoddinott, G.; Kashnitsky, D.; Kielmann, Karina; Kunor, T.; Lin, D.; McDowell, A.; Mitchell, E.M.; Oga-Omenka, C.; Samina, P.; Shikoli, S.A.; Silva, D.S.; Stein, R.; Stillo, J.; van der Westhuizen, H.M.; Wingfield, T.; Zwerling, A.; Daftary, A.
    Reducing systemic inequities in testing, access to care, social protection – and in the scientific process – is essential to end TB. Incorporating social science methods and expertise on inequity into the mainstream TB response would help ensure that political commitments to equity move beyond symbolic gestures. We convened a meeting between TB social scientists, people with lived experience, civil society and community members to discuss equity within the global TB response. Here, we propose five means by which a social science lens can strengthen equitable, person-centred responses and reconcile the public health significance of TB with the principles of social justice.
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    The Impact Study: A Cluster-randomised Clinical and Health Economic Feasibility Study of a Theory-based Manualised Intervention to Support People With Tuberculosis Disease During Treatment
    (American Thoracic Society, 2023-05-01) Lipman, M.C.I.; Walker, E.; Moon, Z.; Weng, J.J.Y.; Abubakar, I.; Campbell, C.; Clarke, C.; Copas, A.; Costello, P.; Darvell, M.; Horne, Rebecca; Hunter, R.; Jones, A.; Karat, Aaron S.; Kielmann, Karina; Kilic, A.; Kunst, H.; Mandelbaum, M.; Stagg, H.R.
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    I cry every day': experiences of patients co-infected with HIV and multidrug-resistant tuberculosis
    (Wiley-Blackwell, 2013-09) Isaakidis, P.; Rangan, S.; Pradhan, A.; Ladomirska, J.; Reid, T.; Kielmann, Karina
    Objectives To understand patients' challenges in adhering to treatment for MDR-TB/HIV co-infection within the context of their life circumstances and access to care and support. Methods Qualitative study using in-depth interviews with 12 HIV/MDR-TB co-infected patients followed in a Mdecins Sans Frontires (MSF) clinic in Mumbai, India, five lay caregivers and ten health professionals. The data were thematically analysed along three dimensions of patients' experience of being and staying on treatment: physiological, psycho-social and structural. Results By the time patients and their families initiate treatment for co-infection, their financial and emotional resources were often depleted. Side effects of the drugs were reported to be severe and debilitating, and patients expressed the burden of care and stigma on the social and financial viability of the household. Family caregivers were crucial to maintaining the mental and physical health of patients, but reported high levels of fatigue and stress. Mdecins Sans Frontires providers recognised that the barriers to patient adherence were fundamentally social, rather than medical, yet were limited in their ability to support patients and their families. Conclusions The treatment of MDR-TB among HIV-infected patients on antiretroviral therapy is hugely demanding for patients, caregivers and families. Current treatment regimens and case-holding strategies are resource intensive and require high levels of support from family and lay caregivers to encourage patient adherence and retention in care.
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    Introduction: Margaret Lock and medical anthropology
    (McGill Queens University Press, 2013-11) Adelson, Naomi; Butt, Leslie; Kielmann, Karina; Adelson, Naomi; Butt, Leslie; Kielmann, Karina
    A collection of essays taking up Margaret Lock's enduring project to question our deeply held assumptions about biology, medicine, and culture. Where do our conventional understandings of health, illness, and the body stem from? What makes them authoritative? How are the boundaries set around these areas of life unsettled in the changing historical and political contexts of science, technology, and health care delivery? These questions are at the heart of Troubling Natural Categories, a collection of essays honouring the tradition of Margaret Lock, one of the preeminent medical anthropologists of our time. Throughout her career, Lock has investigated how medicine sets boundaries around what is deemed normal and natural, and how, in turn, these ideas shape our technical and moral understandings of life, sickness, and death. In this book, nine established medical anthropologists - all former students of Lock - critically engage with her work, offering ethnographic and historical analyses that problematize taken-for-granted constructs in health and medicine in a range of global settings. The essays elaborate cutting-edge themes within medical anthropology, including the often disturbing, inherently political nature of biomedicine and biotechnology, the medicalization of mental health processes, and the formation of uniquely local biologies through the convergence of bodily experience, scientific discourse, and new technologies of care. Troubling Natural Categories not only affirms Margaret Lock's place at the forefront of scholarship but, with these essays, carves out new intellectual directions in the medical social sciences. Contributors include Sean Brotherton, Vinh-Kim Nguyen, Junko Kitanaka, Stephanie Lloyd, Dominique Behague, and Annette Leibing.